Called Dr. Burke's office and talked to Diane, she said the biopsy results weren't in yet. She also said the doctor was referring me to an oncologist. I asked her if the oncologist would do something for the intense pain I'm having. She said "probably" and "but there's only so much they can do"and "maybe they can give you chemo that will make the pain better"... which wasn't the least bit reassuring. And now I'm back on the conveyor belt being shuffled to the next doctor and still with no primary care doctor but that's another story.
So I talked with the Florida Cancer Specialists and have an appointment to meet with Dr. Ana Vanderwall, an oncologist, Friday morning. I hope the biopsy results are back by then.
This is all still surreal... Less than 18 months ago an upper body scan was done on me in the ER of Blake Medical Center. I clearly remember Dr. Farmer telling us that my lungs looked like crushed glass, but he was sure it was neither cancer or TB. He diagnosed me with bronchitis and sent me home on antibiotics. And now I suddenly have this cancer growing through out my body?
But I want to end this on a high note- a new season of Grace and Frankie comes out tomorrow! During one of my late night omg I'm dying inner discussions I actually lamented to myself that I'd never see another Grace and Frankie season.
It gets me how people who have no idea claim the US has such a good health care system. It's just not true. It sucks in so many ways, but we only learn about that when we really need it. I'm so sorry you're going through this.
ReplyDeleteDoes ROM or any of your friends know your password to twitter or here they can let us know if something happens and we aren’t worried sick?
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