I got an email today from a friend suggesting that I not candy coat this dying stuff and make it pretty romance. I agreed, she's right. There's a lot wrong with dying of cancer. But there is a romance element playing out that I didn't expect. I've always loved my husband and thought he was amazing. I think I took it for granted and stopped noticing how special he is. Now I'm seeing him with new eyes and falling in love all over again. But I've been asked to be more real so here goes... some notes I've been taking...
Pain- no such thing as complete relief of pain. I'm learning I have to work with the meds. Instead of taking my meds and relaxing to let them work, I would get up and stay busy until I felt them wearing off. I'm now trying to work with them. I don't want to build up a tolerance too early.
Sleep is elusive. I'm more comfortable in a semi-reclining position. Lying flat causes more spine pain. But when I don't spend some time sleeping lying down, my ankles and feet swell up.
Food and taste- Not much of an appetite and small amounts fill me up quickly. I do better eating small amounts throughout the day and evening. I'm not undergoing any treatments so nausea hasn't been a problem. Just a bloated full feeling. I continue to maintain my weight - I got the damn fat cancer.
Today I developed a nasty thrush infection in my mouth and throat from the steroid inhaler I've been using. I called my nurse, Trisha, as soon as I saw my mouth and throat. By afternoon she had me on something for the thrush and switched me to a nebulizer and new meds for my lungs. Our new answer to everything when we wonder what to do about something- call Tidewell!
And Mike woke up with a cold this morning. Not the flu or Coronavirus- just a cold. But now he feels miserable and we also have to worry about me catching it. Little things are a big deal now. So we're a bit quiet and wore out tonight.